31 Comments
User's avatar
Melanie R. Jordan NBC-HWC's avatar

Love that pic of Bray Bray in the Never Give Up attire Chris--besides the powerful poem of course :)

Chris B. Writes's avatar

Thanks Melanie!

Alex Kamis's avatar

I love the recurring lines that don’t just repeat. They deepen each time. By the end, they carry the weight of everything that came before.

Chris B. Writes's avatar

Thank you Alexandra, that means a lot to me, as I was trying to build to that crescendo.

Alex Kamis's avatar

It landed exactly as intended. Nicely done.

Chris B. Writes's avatar

Thank you again!

Michele Cernese's avatar

Another beautiful writing, i can also visualize what you dream of❤️

Gary L Taylor's avatar

Brilliant, beautiful words.

Chris B. Writes's avatar

Thank you Gary

Aaqiel Pillay's avatar

Your poem captures something real about caregiving Chris.

The paperwork mounds.

Insurance companies that don't care.

Fighting and clawing just to get basic accessibility equipment.

And in the middle of it all?

You steal one hour to close your eyes and dream he's whole.

Running.

Dancing.

Standing.

The dreams keep you human when the "system" treats you like a case number.

And that contrast...

...between the miraculous boy in dreams and the wheelchair-bound reality you're fighting insurance for bathroom tiles to support...

It's where the heartbreak lives.

And somehow?

The love...

Your love...

Still overtakes everything.

Thanks once again for this stunning poem!

Chris B. Writes's avatar

Thank you Aaqiel, you definitely captured a few of the themes.

just mud by Ron's avatar

I feel like you let us sit with you and Bray Bray, and we all get to go to Jone's Beach.

Chris B. Writes's avatar

Thank you Ron, that is a huge compliment that you could feel the scene come to life.

Kelly - Mothers never give up's avatar

Oh Chris! What a stunning masterpiece! You captured many layers of emotions and the complexity so beautifully. Another powerful testament to your love for Bray Bray, and a great product from your incredible talent and beautiful heart. ❤️❤️❤️

Chris B. Writes's avatar

Kelly! There are no words to adequately describe the respect I have for you. Thank you so much for such kind words.

Kelly Trost's avatar

Chris, you've done another beautiful job in the creation of your song. Your lyrics are beautifully balanced with your music in a balanced design to form an artful testament to your love, and your love for Bray Bray. This is one of your finest achievements to date.

Chris B. Writes's avatar

Thank you so much Kelly, for all of your kindness and support.

Kelly Trost's avatar

You’re welcome, Chris! You did a beautiful job!

Andrea Rogers's avatar

So beautiful! God Bless!

Chris B. Writes's avatar

Thank you Andrea

The In Between's avatar

This is really beautiful.

Haide Wall Giesbrecht's avatar

Beautiful, Chris. It captures the grief, the joy, the exhaustion, and the love that coexist when we have children with disabilities.

Chris B. Writes's avatar

Thank you Haide, really appreciate your kind words and shared empathy. We are in this together.

Yolanda D.'s avatar

Thank you, that was beautiful. I was a caregiver to three different family members. Intense but gratifying! ❤️❤️

Chris B. Writes's avatar

Thanks so much Yolanda.

Fatimah Ali, PhD-Lupus Health's avatar

Love this creative style.

Chris B. Writes's avatar

Thank you Fatimah!

Hina Gondal's avatar

Exceptional Chris ❤️

Chris B. Writes's avatar

Thank you so much Hina!

User's avatar
Comment deleted
Feb 28
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Chris B. Writes's avatar

Hi Jane, I am glad to connect and thank you for the kind words. Kelly is just the best.